tag:blogger.com,1999:blog-8445151921348267136.post5456178904198569028..comments2024-01-12T05:26:16.475-08:00Comments on HNPP - Our Story: MDA Website and HNPPjerusharenhttp://www.blogger.com/profile/01564215375913333825noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-8445151921348267136.post-63592186505347638382015-08-30T12:37:21.983-07:002015-08-30T12:37:21.983-07:00Just wanted to share my appreciation for your blog...Just wanted to share my appreciation for your blog. I was diagnosed with HNPP about 6 years ago, when I did a lot of online research. A flaring up of symptoms brought me back online, and it's so helpful to have medical and also personal accounts out there, to be read whenever people need them, even if it's been a few years since the post. My son, now 18, clearly shows symptoms as well. I hope you are all doing well! Lauren T, Brooklyn NY. Lauren Thompsonhttps://www.blogger.com/profile/12875311209891862421noreply@blogger.comtag:blogger.com,1999:blog-8445151921348267136.post-45178194732483709882014-08-13T08:31:01.655-07:002014-08-13T08:31:01.655-07:00Good luck, I hope they change their info and inclu...Good luck, I hope they change their info and include HNPP. <br />I'm fairly sure that in the past they did have a separate section for HNPP under the CMT info. But I noticed a few years ago that it was removed. <br />We have the same situation in the UK, the MDA equivalent used to have fact sheets for HMSN, which broadly meant HNPP was included, but a different medical advisor took over and changed it all to CMT info. And as you say although there's some similarities it's the differences between CMT and HNPP that matter.Anonymousnoreply@blogger.com