I wanted to start this blog to share our family's experience with HNPP. There is not a lot of information available so the more we can share the more we can help each other and help in the research process. We would love to hear from you too. - Our Family.
Wednesday, March 27, 2013
Thank You
I want to thank all that send me emails and comments. I am very slow sometimes to respond and I want you to know that I do appreciate all your support and advice. I am often overwhelmed in my day to day life, hence the very infrequent posts, and am happy when I get at least half of what I had planned done each day. Know that we receive your messages and greatly appreciate them.
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