Daughter's Story

I was paralyzed from HNPP for a long time on my hand and my other hand has got weaker. I went through many many tests but they didn't know what I had. I went to different doctors, they did different things to me but they never knew what I had. I was scared that I would never get my hand back til finally a doctor named Dr. Sakanju and another doctor named Brian. And after I found out about HNPP I couldn't do lots of things or I would get paralyzed again. I learned to live with it but I still worry if I will get paralyzed again. I hope to find someone that is like me and share what happened to them.
(I am an eight year old girl who has HNPP)