I was paralyzed from HNPP for a long time on my hand and my other hand has got weaker. I went through many many tests but they didn't know what I had. I went to different doctors, they did different things to me but they never knew what I had. I was scared that I would never get my hand back til finally a doctor named Dr. Sakanju and another doctor named Brian. And after I found out about HNPP I couldn't do lots of things or I would get paralyzed again. I learned to live with it but I still worry if I will get paralyzed again. I hope to find someone that is like me and share what happened to them.
(I am an eight year old girl who has HNPP)
Jerusha!! We need to talk!
ReplyDeleteDr sakanju told me about your story okay. My son s getting tested. How funny I found your blog!!!
ReplyDeleteWelcome, Marie! How old is your son? My daughter would love to meet with other children like her.
ReplyDeleteParker is 4 and we're waiting for the results
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